National Vaccine Registry

National Vaccine Registry

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Vaccines are now recorded and registered with your state’s vaccination registry.

 

According to the CDC:

 

Immunization Information Systems are confidential, population-based, computerized information systems that attempt to collect vaccination data about all children within a geographic area. IIS are an important tool to increase and sustain high vaccination coverage by consolidating vaccination records of children from multiple providers, generating reminder and recall vaccination notices for each child, and providing official vaccination forms and vaccination coverage assessments. One of the national health objectives for 2010 is to increase to 95% the proportion of children aged <6 years who participate in fully operational population-based IIS.

 

If you look further down the page you will find this statement:

 

State law requires that information in the IIS be kept confidential. Only you, your doctor, or healthcare workers who can assist you have access to the information. The information will not be shared with any other people or any other agency. If you are not interested in having your child in the IIS, all you would need to do is contact your state IIS and request to “opt-out” of the registry.

 

Healthcare workers would include Department of Health, CDC, and other government monitoring agencies. Is your child’s school a healthcare agency? Last I knew they were in the education field, yet they have access to it as well. Even the WIC program has linkages. See also: WIC Policy for Immunization Screening and Referral

 

Is this “opt-out” provision true? Not entirely. New York State no longer allows an ‘opt-out’ provision. That means, all children regardless of whether they are vaccinated or not, are in the system. If this vaccine registry was solely for its stated purpose above, why would nonvaccinated children need to be in it? They don’t need reminder notices or updated vaccination forms, etc.

 

Will children with medical or religious exemptions need to be included in NYSIIS?

  • These children will be entered in NYSIIS and their records noted with the appropriate exemption. NYSIIS is a valuable tool to identify and protect these children in the event of an outbreak of a vaccine preventable disease. (bolding mine)

 

Why not call it what it is: identify, track, control, and discriminate.

I have heard many stories over the last few years of parents who ‘opted out’ in other states, yet they have found their child in the vaccine registry. Wouldn’t that be a clear violation of the HIPPA law?  No, and here is why:

 

Shalala Will Decide Privacy Rights If Congress Does Not Meet Deadline

 HIPAA provided that, if Congress does not enact legislation to create standards to protect individually identifiable health information in medical records by August 21, 1999, then the Secretary of HHS is required to establish rules governing how much information the government and other third parties can get out of private medical records by February 21, 2000. Currently, there are four medical privacy bills in the House and Senate, including the Health Care Personal Information Nondisclosure Act of 1999 (S.578-Senators Jeffords/Dodd); the Medical Information Protection Act of 1999 (S.881-Senator Bob Bennett) and the Medical Information Privacy and Security Act (S.573/H.R. 1057-Leahy/Kennedy).

All of these medical “privacy” bills allow extensive exemptions for unrestricted access and use of personal medical information in an individual’s medical records by anyone who invokes a right to access and use this information in the name of the public health including government officials, researchers and law enforcement officers. Citizens can be enrolled without their informed consent as research subjects in medical experiments if researchers make the case that the study will contribute to the public health.

This means that, without the individual’s informed consent, researchers working with government, industry and private physicians will be allowed unrestricted access to personal medical records for the purpose of enrolling unsuspecting patients in medical research experiments. Scientific researchers of the future could experiment on citizens with new drugs and vaccines. The elderly will not know whether the nursing home doctor urging the use of a new antidepressant or the family pediatrician recommending to a mother that her infant get 15 vaccines in one day, is making that recommendation because it is in the best interest of the individual or because the doctor has enrolled his patients in a government-endorsed medical experiment.

 

 Often, when these parents have requested to opt-out, they have been given false information from the Department of Health or have had to jump through hoops to get their child’s name removed. I seriously question if their name is ever entirely removed.

 

 The AAP’s stance:

 
The American Academy of Pediatrics continues to support the development and implementation of immunization information systems, previously referred to as immunization registries, and other systems for the benefit of children, pediatricians, and their communities. Pediatricians and others must be aware of the value that immunization information systems have for society, the potential fiscal influences on their practice, the costs and benefits, and areas for future improvement.

 

Yes, the almighty dollar sign right in the first paragraph…cha-ching!

 

How did the National Vaccine registry come about? Who or where does it get its funding from?

 All Kids Count

 The All Kids Count II program, funded by The Robert Wood Johnson Foundation (RWJF) from 1998-2000, sought to make 16 immunization registry projects based in local, county, and state health departments fully operational by January 1, 2000. The program also sought to develop a long-term policy to ensure registries are implemented and sustained nationwide. The program built on progress made under All Kids Count Phase I, 1992-1997, an RWJF program to begin the development of registries.

The national program office was based at the Task Force for Child Survival and Development in Atlanta With guidance from the program’s National Advisory Committee, the national program office gave grants ranging from $300,000 to $700,000 to 16 projects.

RWJF’s Board of Trustees authorized up to $11.25 million for phase II beginning in 1997.

 

…In late 1997, public policy set the stage for All Kids Count projects and other state and community registries to take a giant step forward. President Bill Clinton issued a presidential directive to Secretary of Health and Human Services Secretary Donna Shalala “to start working with states on an integrated immunization registry system … we have to do it and do it right.”

 

As a result, an Initiative on Immunization Registries was undertaken by the National Vaccine Advisory Committee (NVAC), with support from the National Vaccine Program Office (NVPO) and the National Immunization Program of the CDC.

At the same time, more communities and states were developing or implementing registries. In 1998, when All Kids Count II began:

 

All 50 states had begun developing immunization registries.

Some 18 states had a law or rule authorizing immunization registries.

Ten states and several cities had mandated private provider reporting of immunizations to registries.

In 2001, 25 states had a law or rule authorizing immunization registries, and several states planned to introduce legislation or rules authorizing registries.

 …Educational Effort
All Kids Count began an intensive effort with immunization partners, especially the National Immunization Program, American Academy of Pediatrics and Every Child by Two (a non-profit organization that raises awareness of the importance of getting children fully immunized by the time they are two years old) to inform policymakers about the benefits, costs, and savings of registries, and the need to find a sustained source of funding if the promise of registries were to be realized.

 …The education effort culminated in a legislative briefing held May 1, 2000, in Washington, D.C. Hosted by former First Lady Rosalynn Carter and Mrs. Betty Bumpers, co-founders of Every Child by Two, the briefing had bi-partisan sponsorship from members of the Senate and House. Leading health organizations, health care professional organizations, and education organizations co-sponsored the briefing.

Carter and Bumpers urged legislators to find the political will and financial backing for development of immunization registries.

 New Federal Attention and Funding

…The education effort paid off. At the July 2000 National Immunization Conference, Secretary of Health and Human Services Donna Shalala promised support through the Medicaid program.

In Fall 2000, Medicaid announced its commitment to fund development and implementation of immunization registries at an enhanced rate of up to 90 percent matching funds for registry costs associated with Medicaid-eligible children (approximately 26 percent of children under age 7).

 

In June 2000, the Institute of Medicine issued Calling the Shots: Immunization Finance Police and Practices, a report on the future of the nation’s immunization system. It noted that community immunization information systems are an important tool to help keep children from but that a commitment must be made to ensure their success.

 

The report, approved by NVAC in January 2001, recommended:

 Continued and increased support for registries through the federal immunization grant program.

Wide promotion of use of Medicaid funds for registries.

Seeking approval to use the CDC’s Vaccines for Children operational funds for registries.

Discussions with insurers/health plans urging them to provide support for registries.

Development of a five-year, $60-million a year grant program to support further development and initial operation of registries.

 

…As All Kids Count II closed in 2001, The Robert Wood Johnson Foundation funded All Kids Count for three years to develop a vision for information systems that will integrate data about multiple health services.

 

 Immunization Registry Strategic Plan 2002-2007

Medicare and Medicaid funding

Federal Direct Assistance Grant Funds

Research Grants

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